Spinal Muscular Atrophy: Indians who need a $2.1m drug to fight rare diseaseSpinal Muscular Atrophy: Indians who need a $2.1m drug to fight rare disease
Affan, seven, and Erhan, five, have Spinal Muscular Atrophy (SMA) – a rare genetic disorder that causes muscle deterioration and affects breathing. Physiotherapy appointments alone cost the family 40,000 rupees